Daily Archives: February 20, 2014

Who am I? Who are you?

Most of the blogs I read are about diabetes, but there are a few others to which I regularly make the rounds. Among them is a blog written by the mother of a boy man with Angelman Syndrome. ┬áIf you’ve been following me for awhile, you know that my only brother has Angelman (or, to phrase it in a way I learned from that blog, “is an angel”).

And as a quick refresher on what this means, and I’ve blogged about it a few times before: my brother is 37 years old. He is unable to talk, read, or perform basic tasks (like getting dressed or using the bathroom) without assistance. He communicates by way of grunts, gestures, and facial expressions. He’s got the mind and behavior of a 2-year old but the strength of a grown man, and a hug can literally knock you to the ground. I watched my seven-year-old son pass him, intellectually, long ago, and my two-year-old is passing him in some ways now.

Anyway, this blog that I read ended with a link to a petition to the White House to increase funding for researching treatments and a cure for Angelman Syndrome. And that got me thinking. Not the treatment part (of which we could use all the help we can get, and hopefully put an end to the rotating cocktail of meds and side effects that he consistently uses), but the cure part. I asked myself, “do I want to see him cured?”

Read the rest of this entry