Category Archives: Type 1
Life’s been hectic and blogging time’s been scarce, but I’ve got a few moments to share this quick anecdote:
On Monday night, I had pizza for dinner before lacing up the skates to help out at my son’s hockey practice. The pizza means I had an extended (dual-wave) bolus in action; the skating means I had a reduced temporary basal in effect. I felt kinda foolish, taking such measures which essentially cancelled one another out. But you know what?
(Maybe the message would be more dramatic if I had a photo).
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Meanwhile, please go read Sue from Pennsylvania’s post at Test, Guess, and Go. You may not think Medicare rules may apply to you, but someday they will. And as more and more private insurers follow a “standard” (i.e. Medicare), this could get worse before it gets better… unless we make ourselves heard! [UPDATE: link to Sue's post corrected!]
Valentine’s Day means different things to different people.
Maybe you think about teenage romance and the high-school dance.
Or maybe you see it through more grown-up eyes: sparkling wine, smooth jazz, and/or wild sex.
Some view it as an opportunity to rekindle a fire that has nearly burned out after years of neglect.
Perhaps you’re a cynic, believing that February 14th is simply a fabricated holiday created to boost sales of cards, chocolate, and flowers. Maybe you feel captive to the holiday, making an obligatory purchase of said cards, chocolate, or flowers, rather than risk a terrible scorn when you get home.
Or maybe it’s a day of sorrow — remembering someone who you’ve loved and lost, or simply trying to find somebody to love at all.
But most certainly, Valentine’s Day isn’t about children, right? How can it POSSIBLY be about the children? The rugrats who always seem to find a way to abort any hope of a romantic interlude? When the term children is used in the context of Valentine’s Day, it often comes with another term: babysitter.
I see Valentine’s Day a bit differently. On the 14th of February in 2007, my life changed forever. On that day, I became a parent.
So, yes. To me, Valentine’s Day is all about the children. It’s about a love, a commitment, and an obligation towards that tiny little life who relies on you for so much.
It’s about those two little eyes that look at you for the first time ever, in complete innocence and complete reliance, saying Here I am. I submit my entire self to you for security, nourishment, and whatever else I need, for I can’t do anything on my own. It’s that first trip home from the hospital – trembling and paranoid that something could go wrong – because the stakes have now been raised. It’s a feeling … a feeling so powerful … that I can’t describe it in words. It needs to be experienced to be understood.
This is what I experienced on Valentine’s Day in 2007. And again, on an ordinary November day a half-decade later.
Now, with all this talk about Valentine’s Day, ten days before the fact, you probably see where I’m going with this (this is my literary pause – the transition from the sappy part to the scary part. Deep breath).
There is always a lingering possibility … a fear … that something could go wrong. That the unexpected happens. And that, when those little eyes meet yours, that you’re unable to respond.
Imagine looking at your child, sick and frail. Helpless. And so are you — also helpless. It must be the most awful feeling on earth.
Imagine knowing that one shot of insulin will make all the difference – at least for awhile. Imagine knowing that the insulin is out there, but you just can’t get your hands on it. Or worse, you can get your hands on it, but you can’t find a syringe with which to inject it. The thought alone scares the hell out of me. The thought of being helpless, powerless, as my child suffers is unbearable to me.
These scenarios happen all the time in nations like Haiti, Kazakhstan, and some others. These are the observations that Dr. Fran Kaufman relayed to us during the Medtronic Diabetes Advocates Forum last month. Often, we hear of it in broad generalizations, describing populations in places we couldn’t locate on a globe.
By now, you’ve no doubt read the Tweet-heard-(and retweeted)-round-the-world.
To me, Spare-a-Rose, Save-a-Child isn’t about putting a “minus-one” on the enormous tally-board that represents how many children fail to survive due to lack of insulin.
It’s about giving a child an opportunity to develop to his or her full potential. It’s about giving parents some hope. It’s giving these Type 1 children a legitimate reason not to give up. It’s about keeping families together. Give them the supplies and the education, and they’ll do their damnedest to learn how to use it properly.
You’ll just have to take that last statement on faith. I can’t back it up and I know there are some parents, in all parts of the world, who don’t show this limitless love for their children. I can’t figure out why — I just can’t comprehend it one bit . But I truly believe that most people are good people. Some even transcend good, and will want to give the child a loving home in addition to some vital insulin.
I trust you know how it works. Five bucks gives insulin for a month. Sixty bucks lasts a year.
Send the metaphorical twelfth rose to someone who needs it. Plant it. Nurture it. Just as the rose will blossom, so will the child. Just as new flowers will bloom and produce new plants, so too will the knowledge and wisdom of treating Type 1 diabetes permeate through the community.
One bulb can turn a field of dirt into a beautiful garden. One selfless act can transform a village of despair into a place of delight.
Do it for the children. I love children. Show them some love this Valentine’s Day.
You can participate by clicking the image below.
If you follow this blog’s Facebook page, you probably saw the little blurb I put up over the weekend. I photographed part of a page out of Diabetes Forecast, the magazine published by the American Diabetes Association. As I see it, this is a respectable organization; there are no lies, ulterior motives, or deep discounts on snake oil from them. If they say it, I tend to believe it.
But in September’s issue, right there on page 20, was the bold headline that you see above. The paragraph that follows was quite disturbing, and generated a bit of discussion under the Facebook post.
The online version of the story, with the same content but a headline slightly modified to read “INACTIVE KIDS HAVE HIGHER TYPE 1 RISK” is available for all to read – if you dare. With respect to the magazine’s copyright, I won’t copy the entire piece here, but the first sentence just about sums it up:
If there’s one thing all people with diabetes have in common (or, who’ve had it for at least a year), it’s that we take shortcuts.
At one time, it was shameful and embarrassing. I remember my father once giving me a stern lecture about my taking shortcuts. (Maybe it was about diabetes, maybe it was about homework. I really don’t remember).
Nowadays, taking shortcuts aren’t only tolerated, but they’re expected. They’re celebrated. Shortcuts are a sign of confidence and independence. Only the timid and hesitant do things the long way.
(Last week, I attended a demo of ShugaTrak, a simple and easy way for parents to keep track of their kids’ blood sugars via automated text messages. I’ll write more about that sometime soon. When the presentation began with the loading a new lancet in the Delica device, I sarcastically asked what that step was for, much to the amusement of the crowd).
But where do these shortcuts come from? Are they learned or taught? There was a time when I did everything by-the-book, and I’m not quite sure what made me change.
Remember: I’m not a doctor and this isn’t medical advice. In fact, everything discussed below is wrong, and should never be done. Never, ever, ever. This post is written only for the purpose of telling stories of my past, and I disclaim responsibility from any ideas or actions someone else might try as a result of my own rebelliousness.